A patient-experience study presented at GlomCon 2026 highlights how nonspecific symptoms can delay diagnosis of IgA nephropathy (IgAN). Among 106 surveyed patients, hematuria and fatigue were common early symptoms, yet hematuria was sometimes initially attributed to urinary tract infection or otherwise not followed up. Abnormal urine protein and hematuria were often what ultimately prompted nephrology referral, but long waits for specialty care could leave some patients nearly 2 years from symptom onset to diagnosis. Once patients reached nephrology, evaluation generally progressed more quickly, underscoring the importance of recognizing and following up on abnormal urine findings earlier in the care pathway.
The findings reinforce the value of maintaining suspicion for kidney disease when hematuria or proteinuria persists, recurs, or lacks a clear explanation. Gaia Coppock, MD, emphasized that even when IgAN is unlikely, checking urine and following up on abnormalities can help shorten diagnostic delays. Earlier recognition may also matter as the treatment landscape expands, because patients diagnosed later may already have more advanced chronic kidney disease and fewer therapeutic options. The survey also found that many patients felt confused after diagnosis, highlighting the need for clear education, timely referral, and communication that helps patients understand what comes next.
Reference: Coppock G. Mistaken for a UTI: Diagnosing IgA Nephropathy, With Gaia Coppock, MD. HCP Live. Published September 9, 2026. Accessed September 17, 2026. https://www.hcplive.com/view/mistaken-for-a-uti-diagnosing-iga-nephropathy-with-gaia-coppock-md
Link: https://www.hcplive.com/view/mistaken-for-a-uti-diagnosing-iga-nephropathy-with-gaia-coppock-md
